Patient Support Groups

Related Links

Being diagnosed with MPS I and MPS II disease can be challenging for new patients.

Patient support groups and patient network allow patients to connect, share and collaborate with other patients, carers and family members. Giving patients access to information about their disease is empowering and a pivotal step in their journey post diagnosis.

The following links to patient groups are provided as additional resources for information. 

Australian patient support groups


The Australian MPS Society

Rare Voices Australia 

Genetic Alliance Australia

Victorian Genetic Services Australia