Patient Support Groups

Being diagnosed with MPS I and MPS II disease can be challenging for new patients.

Patient support groups and patient network allow patients to connect, share and collaborate with other patients, carers and family members. Giving patients to access information about their disease is empowering and a pivotal step in their journey post diagnosis.

The following links to patient groups are provided as additional resources for information. 

Australian patient support groups

Australia

The Australian MPS Society

Rare Voices Australia 

National Smile Foundation 

International patient support groups and networks 

Austria 

The Austrian MPS Society

Belgium 

BOKS

Canada 

The Canadian MPS Society

France

Vaincre les Maladies Lysosomales (VML)

Germany

Gesellschaft für Mukopolysaccharidosen

Ireland

Irish Mucopolysaccharide Society

The Netherlands

Vereniging voor kinderen met stofwisselingsziekten

New Zealand

Lysosomal Diseases in New Zealand (LDNZ)

Switzerland

Verein MPS Schweiz
c/o Karen Peci
Bahnhofstrasse 7
8193 Eglisau
www.verein-mps.ch

United Kingdom

The Society for Mucopolysaccharide Diseases

United States

The National MPS Society