Support Groups

Being diagnosed with Gaucher disease can be challenging for new patients.

Patient support groups and patient networks allow patients to connect, share and collaborate with other patients, carers and family members. Giving patients to access information about their disease is empowering and a pivotal step in their journey post diagnosis. 

The following links to patient groups are provided as additional resources for information. 

Australian patient support groups 

Gaucher Association of Australia & New Zealand

Rare Voices Australia

Genetic Alliance Australia

Victorian Genetic Services Australia