Support Groups

Being diagnosed with Gaucher disease can be challenging for new patients.

Patient support groups and patient networks allow patients to connect, share and collaborate with other patients, carers and family members. Giving patients to access information about their disease is empowering and a pivotal step in their journey post diagnosis. 

The following links to patient groups are provided as additional resources for information. 

Australian patient support groups 

Gaucher Association of Australia 

Rare Voices Australia

National Smile Foundation


International patient support groups and networks 

National Gaucher Foundation US

Lysosomal Disease New Zealand – LDNZ

Gaucher Association UK

National Organization for Rare Disorders (NORD)