Patient Resources

When a patient is diagnosed with Fabry disease, knowledge and access to information are powerful tools.  

Patients who are educated about their condition and treatment options are better prepared to manage their own health, engage in important dialogues with healthcare professionals and the general public.

To assist with this process we have provided you with links to local and international support networks, access to videos and patient support programmes that will help patients with their journey with Fabry disease.

We are committed to empowering patients through knowledge to ensure they fully understand their condition. 

Fabry Care Manager Service

Fabry Care Manager Service

The Fabry Care Manager Service is a free telehealth service giving patients extra support in the management of their condition. 

Home Infusion Program

Home Infusion Program

The Fabrazyme Home Infusion Program aims to provide exactly the same level of infusion care received in hospital while improving patients’ quality of life and ensuring the quality use of medicines.

Patient Support Groups

Patient Support Groups

Patient support groups provide support and information on Fabry disease bringing the Fabry community and others living with genetic disorders closer together.